Hello
My daughter is mid tests for suspected coeliac disease. I am finding it all quite confusing as one gastro says this and the other that. My daughter was diagnosed when she was 6 after becoming extremely anaemic and having a colonoscopy and endoscopy carried out. The results were very low grade and she has never tested positive to the blood tests. She did go on a gluten and dairy free diet and after two years her bloods were up. We moved country and saw another gastro chap who didnt think she was coeliac and took her off the diet. She has been on a normal diet for 3 years now and yet again her ferritin has dropped to 5. We are booked in for another endoscopy in a few weeks time.
I feel helpless with all this testing on my precious 12 year old. She is so tired and pale despite being on 200mg of ferrous sulphate. I just dont know what I can do to help. I would like a positive diagnosis whatever that may be and to just get on. I'm fed up with the undecisive side of this illness.
Any comments/suggestions would be very much appreciated.
My daughter is mid tests for suspected coeliac disease. I am finding it all quite confusing as one gastro says this and the other that. My daughter was diagnosed when she was 6 after becoming extremely anaemic and having a colonoscopy and endoscopy carried out. The results were very low grade and she has never tested positive to the blood tests. She did go on a gluten and dairy free diet and after two years her bloods were up. We moved country and saw another gastro chap who didnt think she was coeliac and took her off the diet. She has been on a normal diet for 3 years now and yet again her ferritin has dropped to 5. We are booked in for another endoscopy in a few weeks time.
I feel helpless with all this testing on my precious 12 year old. She is so tired and pale despite being on 200mg of ferrous sulphate. I just dont know what I can do to help. I would like a positive diagnosis whatever that may be and to just get on. I'm fed up with the undecisive side of this illness.
Any comments/suggestions would be very much appreciated.









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