Okay I'm really lost and need some help and guidance. I have not been diagnosed with Celiacs. I'm going to try to get this as short as possible. I started suffering deliberating abdominal pain attacks in 2006. I would have severe cramping, gas, bloating, diarrhea, fatigue, and basically felt like I was dying. I've been to many GI doctors and many other doctors in different areas. So I had a colonoscopy like 5 years ago and my doctor said he was almost 100% sure I had Celiacs because of how my intestines looked and made a comment about Celiac Spru? So I went out and bought book on Celiacs and books about going gluten free. After my test results came back I tested negative for Celiacs so I never really thought about it again. Over the years I've tried to go gluten free twice and the first time I wasn't committed and obviously felt no different because I was only eating gluten free once a day. Then two years ago I tried to go gluten free again and had more success but then I had a bad pain attack and was convinced that gluten wasn't the issue.
I've been tested a few times for Celiacs and it always comes back negative but I never could get the doctor saying my intestines looked like I had been affected with Celiacs.
Basically in a nut shell I always feel sick. My stomach is always upset, cramping, giving me diarrhea, or constipation. My body always aches. It seems like almost everything I eat makes me sick. I plan my food schedule around everything because I'm so scared I'll get sick. I have eczema. But every once in a while I'll feel fine. I'm bloated to the point where I look 3-4 months pregnant and I'm always getting asked. They'll tell me " Your small everywhere else then you have this big head belly.
I wish I never what was wrong with me.
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